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| 1 | AN ACT concerning children.
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| 2 | Be it enacted by the People of the State of Illinois,
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| 3 | represented in the General Assembly:
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| 4 | Section 5. The Early Intervention Services System Act is | ||||||||||||||||||||||||||
| 5 | amended by changing Sections 11 and 12 as follows:
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| 6 | (325 ILCS 20/11) (from Ch. 23, par. 4161)
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| 7 | Sec. 11. Individualized Family Service Plans.
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| 8 | (a) Each eligible infant or toddler and that infant's or | ||||||||||||||||||||||||||
| 9 | toddler's family
shall receive:
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| 10 | (1) timely, comprehensive, multidisciplinary | ||||||||||||||||||||||||||
| 11 | assessment of the unique
strengths and needs of each | ||||||||||||||||||||||||||
| 12 | eligible infant and toddler, and assessment of the concerns
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| 13 | and priorities of the families to appropriately assist them | ||||||||||||||||||||||||||
| 14 | in meeting
their needs and identify supports and services | ||||||||||||||||||||||||||
| 15 | to meet those needs; and
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| 16 | (2) a written Individualized Family Service Plan | ||||||||||||||||||||||||||
| 17 | developed by a
multidisciplinary team which includes the | ||||||||||||||||||||||||||
| 18 | parent or guardian. The
individualized family service plan | ||||||||||||||||||||||||||
| 19 | shall be based on the
multidisciplinary team's assessment | ||||||||||||||||||||||||||
| 20 | of the resources, priorities,
and concerns of the family | ||||||||||||||||||||||||||
| 21 | and its identification of the supports
and services | ||||||||||||||||||||||||||
| 22 | necessary to enhance the family's capacity to meet the
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| 23 | developmental needs of the infant or toddler, and shall | ||||||||||||||||||||||||||
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| 1 | include the
identification of services appropriate to meet | ||||||
| 2 | those needs, including the
frequency, intensity, and | ||||||
| 3 | method of delivering services. During and as part of
the | ||||||
| 4 | initial development of the individualized family services | ||||||
| 5 | plan, and any
periodic reviews of the plan, the | ||||||
| 6 | multidisciplinary team may seek consultation from the lead
| ||||||
| 7 | agency's designated experts, if any, to help
determine | ||||||
| 8 | appropriate services and the frequency and intensity of | ||||||
| 9 | those
services. All services in the individualized family | ||||||
| 10 | services plan must be
justified by the multidisciplinary | ||||||
| 11 | assessment of the unique strengths and
needs of the infant | ||||||
| 12 | or toddler and must be appropriate to meet those needs.
At | ||||||
| 13 | the periodic reviews, the team shall determine whether | ||||||
| 14 | modification or
revision of the outcomes or services is | ||||||
| 15 | necessary.
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| 16 | (b) The Individualized Family Service Plan shall be | ||||||
| 17 | evaluated once a year
and the family shall be provided a review | ||||||
| 18 | of the Plan at 6 month intervals or
more often where | ||||||
| 19 | appropriate based on infant or toddler and family needs.
The | ||||||
| 20 | lead agency shall create a quality review process regarding | ||||||
| 21 | Individualized
Family Service Plan development and changes | ||||||
| 22 | thereto, to monitor
and help assure that resources are being | ||||||
| 23 | used to provide appropriate early
intervention services.
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| 24 | (c) The initial evaluation and initial assessment and | ||||||
| 25 | initial
Plan meeting must be held within 45 days after the | ||||||
| 26 | initial
contact with the early intervention services system. | ||||||
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| 1 | The 45-day timeline does not apply for any period when the | ||||||
| 2 | child or parent is unavailable to complete the initial | ||||||
| 3 | evaluation, the initial assessments of the child and family, or | ||||||
| 4 | the initial Plan meeting, due to exceptional family | ||||||
| 5 | circumstances that are documented in the child's early | ||||||
| 6 | intervention records, or when the parent has not provided | ||||||
| 7 | consent for the initial evaluation or the initial assessment of | ||||||
| 8 | the child despite documented, repeated attempts to obtain | ||||||
| 9 | parental consent. As soon as exceptional family circumstances | ||||||
| 10 | no longer exist or parental consent has been obtained, the | ||||||
| 11 | initial evaluation, the initial assessment, and the initial | ||||||
| 12 | Plan meeting must be completed as soon as possible. With | ||||||
| 13 | parental consent,
early intervention services may commence | ||||||
| 14 | before the completion of the
comprehensive assessment and | ||||||
| 15 | development of the Plan. All early intervention services shall | ||||||
| 16 | be initiated as soon as possible, but not later than 30 days | ||||||
| 17 | after parental consent has been obtained for the Individualized | ||||||
| 18 | Family Service Plan. Services may be initiated later than 30 | ||||||
| 19 | days after parental consent has been obtained if the | ||||||
| 20 | multidisciplinary team determines that a later initiation date | ||||||
| 21 | is necessary in order to meet the individual needs of the child | ||||||
| 22 | and family, the child's parent provides informed written | ||||||
| 23 | consent for the later initiation date, and the reasons for the | ||||||
| 24 | later initiation date are documented by the multidisciplinary | ||||||
| 25 | team.
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| 26 | (d) Parents must be informed that early
intervention
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| 1 | services shall be provided to each eligible infant and toddler, | ||||||
| 2 | to the maximum extent appropriate, in the natural
environment, | ||||||
| 3 | which may include the home or other community settings. Parents
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| 4 | shall make
the final decision to accept or decline
early | ||||||
| 5 | intervention services. A decision to decline such services | ||||||
| 6 | shall
not be a basis for administrative determination of | ||||||
| 7 | parental fitness, or
other findings or sanctions against the | ||||||
| 8 | parents. Parameters of the Plan
shall be set forth in rules.
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| 9 | (e) The regional intake offices shall explain to each | ||||||
| 10 | family, orally and
in
writing, all of the following:
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| 11 | (1) That the early intervention program will pay for | ||||||
| 12 | all early
intervention services set forth in the | ||||||
| 13 | individualized family service plan that
are not
covered or | ||||||
| 14 | paid under the family's public or private insurance plan or | ||||||
| 15 | policy
and not
eligible for payment through any other third | ||||||
| 16 | party payor.
| ||||||
| 17 | (2) That services will not be delayed due to any rules | ||||||
| 18 | or restrictions
under the family's insurance plan or | ||||||
| 19 | policy.
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| 20 | (3) That the family may request, with appropriate | ||||||
| 21 | documentation
supporting the request, a
determination of | ||||||
| 22 | an exemption from private insurance use under
Section | ||||||
| 23 | 13.25.
| ||||||
| 24 | (4) That responsibility for co-payments or
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| 25 | co-insurance under a family's private insurance
plan or | ||||||
| 26 | policy will be transferred to the lead
agency's central | ||||||
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| 1 | billing office.
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| 2 | (5) That families will be responsible
for payments of | ||||||
| 3 | family fees,
which will be based on a sliding scale
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| 4 | according to the State's definition of ability to pay which | ||||||
| 5 | is comparing household size and income to the sliding scale | ||||||
| 6 | and considering out-of-pocket medical or disaster | ||||||
| 7 | expenses, and that these fees
are payable to the central | ||||||
| 8 | billing office. Families who fail to provide income | ||||||
| 9 | information shall be charged the maximum amount on the | ||||||
| 10 | sliding scale.
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| 11 | (f) The individualized family service plan must state | ||||||
| 12 | whether the family
has private insurance coverage and, if the | ||||||
| 13 | family has such coverage, must
have attached to it a copy of | ||||||
| 14 | the family's insurance identification card or
otherwise
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| 15 | include all of the following information:
| ||||||
| 16 | (1) The name, address, and telephone number of the | ||||||
| 17 | insurance
carrier.
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| 18 | (2) The contract number and policy number of the | ||||||
| 19 | insurance plan.
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| 20 | (3) The name, address, and social security number of | ||||||
| 21 | the primary
insured.
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| 22 | (4) The beginning date of the insurance benefit year.
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| 23 | (g) A copy of the individualized family service plan must | ||||||
| 24 | be provided to
each enrolled provider who is providing early | ||||||
| 25 | intervention services to the
child
who is the subject of that | ||||||
| 26 | plan.
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| 1 | (h) Children receiving services under this Act shall | ||||||
| 2 | receive a smooth and effective transition by their third | ||||||
| 3 | birthday consistent with federal regulations adopted pursuant | ||||||
| 4 | to Sections 1431 through 1444 of Title 20 of the United States | ||||||
| 5 | Code. | ||||||
| 6 | (Source: P.A. 97-902, eff. 8-6-12; 98-41, eff. 6-28-13.)
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| 7 | (325 ILCS 20/12) (from Ch. 23, par. 4162)
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| 8 | Sec. 12. Procedural Safeguards. The lead agency shall adopt | ||||||
| 9 | procedural safeguards that meet federal
requirements and | ||||||
| 10 | ensure effective implementation of the safeguards
for families
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| 11 | by each
public agency involved in the provision of early | ||||||
| 12 | intervention
services under this Act.
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| 13 | The procedural safeguards shall provide, at a minimum, the | ||||||
| 14 | following:
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| 15 | (a) The timely administrative resolution of
State | ||||||
| 16 | complaints, due process hearings, and mediations as | ||||||
| 17 | defined by administrative rule.
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| 18 | (b) The right to confidentiality of personally | ||||||
| 19 | identifiable information.
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| 20 | (c) The opportunity for parents and a guardian to | ||||||
| 21 | examine and receive
copies of records relating to | ||||||
| 22 | evaluations and assessments, screening, eligibility
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| 23 | determinations, and the development and implementation of | ||||||
| 24 | the
Individualized Family Service Plan provision of early | ||||||
| 25 | intervention services, individual complaints involving the | ||||||
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| 1 | child, or any part of the child's early intervention | ||||||
| 2 | record.
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| 3 | (d) Procedures to protect the rights of the eligible | ||||||
| 4 | infant or toddler
whenever the parents or guardians of the | ||||||
| 5 | child are not known or unavailable
or the child is a ward | ||||||
| 6 | of the State, including the assignment of an
individual | ||||||
| 7 | (who shall not be an employee of the State agency or local
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| 8 | agency providing services) to act as a surrogate for the | ||||||
| 9 | parents or guardian. The regional intake entity must make | ||||||
| 10 | reasonable efforts to ensure the assignment of a surrogate | ||||||
| 11 | parent not more than 30 days after a public agency | ||||||
| 12 | determines that the child needs a surrogate parent.
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| 13 | (e) Timely written prior notice to the parents or | ||||||
| 14 | guardian of the
eligible infant or toddler whenever the | ||||||
| 15 | State agency or public or private
service provider proposes | ||||||
| 16 | to initiate or change or refuses to initiate or
change the | ||||||
| 17 | identification, evaluation, placement, or the provision of
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| 18 | appropriate early intervention services to the eligible | ||||||
| 19 | infant or toddler.
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| 20 | (f) Written prior notice to fully inform the parents or | ||||||
| 21 | guardians, in
their native language or mode of | ||||||
| 22 | communication used by the parent, unless clearly not | ||||||
| 23 | feasible to do so, in a comprehensible manner, of these | ||||||
| 24 | procedural
safeguards.
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| 25 | (g) During the pendency of any State complaint | ||||||
| 26 | procedure, due process hearing, or mediation proceedings | ||||||
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| 1 | or action involving a
complaint, unless the State agency | ||||||
| 2 | and the parents or guardian otherwise
agree, the child | ||||||
| 3 | shall continue to receive the appropriate early
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| 4 | intervention services currently being provided, or in the | ||||||
| 5 | case of an
application for initial services, the child | ||||||
| 6 | shall receive the services not in
dispute.
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| 7 | (Source: P.A. 98-41, eff. 6-28-13.)
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| 8 | Section 99. Effective date. This Act takes effect upon | ||||||
| 9 | becoming law.
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