CONGENITAL HEART DEFECT SCREEN House SponsorsRep. Robyn Gabel, Michelle Mussman, Laura Fine, Robert W. Pritchard, Esther Golar, Cynthia Soto, Camille Y. Lilly, Lawrence M. Walsh, Jr., Daniel V. Beiser, Al Riley, Kenneth Dunkin and Elgie R. Sims, Jr. Senate Sponsors(Sen. Heather A. Steans-John G. Mulroe-Ira I. Silverstein, John J. Cullerton, Patricia Van Pelt, William Delgado, Pat McGuire, Andy Manar, John M. Sullivan, William E. Brady, Michael E. Hastings, Chapin Rose, Emil Jones, III, Linda Holmes and Jacqueline Y. Collins-Mattie Hunter-Wm. Sam McCann) 8/16/2013HousePublic Act . . . . . . . . . 98-0440 210 ILCS 3/85 new210 ILCS 85/17 new Amends the Alternative Health Care Delivery Act and the Hospital Licensing Act. Sets forth the General Assembly's findings concerning the screening of newborns for congenital heart defects. Provides that all birth centers and hospitals must test every newborn for congenital heart defects via a screening test in line with the current standard of care, such as pulse oximetry screening, according to congenital heart defect screening protocols developed by the Department of Public Health in consultation with relevant medical practitioners and stakeholders. Provides that exceptions to mandatory congenital heart defect screenings shall be limited to cases in which the parents object to the screening, or as directed by the congenital heart defect screening protocol.House Floor Amendment No. 2 Provides that all birth centers must test every newborn for critical congenital heart defects (instead of congenital heart defects).Senate Committee Amendment No. 1 Deletes reference to:210 ILCS 3/85 new210 ILCS 85/17 newAdds reference to:410 ILCS 240/1410 ILCS 240/1.5410 ILCS 240/1.10 new410 ILCS 240/2410 ILCS 240/3.1 new410 ILCS 240/3.2 new410 ILCS 240/3.3 new410 ILCS 265/5Replaces everything after the enacting clause. Amends the Newborn Metabolic Screening Act. Provides that the Department of Public Health shall promulgate and enforce rules and regulations requiring that every newborn be subjected to tests for genetic, metabolic, and congenital anomalies as the Department may deem necessary (rather than tests for phenylketonuria, hypothyroidism, galactosemia and such other metabolic diseases as the Department may deem necessary from time to time). Deletes definitions of and references to "expanded screening" and "tandem mass spectrometer". Sets forth the General Assembly's finding concerning critical congenital heart disease. Provides that the Department of Public Health shall require that screening tests for critical congenital heart defects be performed at birthing hospitals and birth centers in accordance with a testing protocol adopted by the Department, by rule, in line with current standards of care, such as pulse oximetry screening, and may authorize screening tests for additional congenital anomalies to be performed at birthing hospitals and birth centers in accordance with a testing protocol adopted by the Department, by rule. Moves and makes changes to the provisions concerning collected specimens and a registry of cases. Moves the provisions concerning services and consultations and treatment formulas. Sets forth provisions concerning the Genetic and Metabolic Diseases Advisory Committee under the Genetic and Metabolic Diseases Advisory Committee Act. Provides that no new screening may begin prior to certain occurrences. Moves the provisions concerning lysosomal storage disorders, severe combined immunodeficiency disease, and mucopolysacchardosis disorders. Amends the Genetic and Metabolic Diseases Advisory Committee Act to provide that members of the Genetic and Metabolic Diseases Advisory Committee may receive compensation for necessary expenses incurred in the performance of their duties. Makes other changes. Effective immediately. 2/21/2013HouseFiled with the Clerk by Rep. Robyn Gabel 2/21/2013HouseFirst Reading 2/21/2013HouseReferred to Rules Committee 3/4/2013HouseAssigned to Human Services Committee 3/7/2013HouseAdded Co-Sponsor Rep. Michelle Mussman 3/7/2013HouseAdded Co-Sponsor Rep. Laura Fine 3/8/2013HouseAdded Co-Sponsor Rep. Robert W. Pritchard 3/11/2013HouseAdded Co-Sponsor Rep. Esther Golar 3/11/2013HouseHouse Committee Amendment No. 1 Filed with Clerk by Rep. Robyn Gabel 3/11/2013HouseHouse Committee Amendment No. 1 Referred to Rules Committee 3/12/2013HouseAdded Co-Sponsor Rep. Cynthia Soto 3/13/2013HouseDo Pass / Short Debate Human Services Committee; 015-000-000 3/13/2013HouseHouse Committee Amendment No. 1 Tabled Pursuant to Rule 40 3/13/2013HousePlaced on Calendar 2nd Reading - Short Debate 3/13/2013HouseAdded Co-Sponsor Rep. Camille Y. Lilly 3/15/2013HouseHouse Floor Amendment No. 2 Filed with Clerk by Rep. Robyn Gabel 3/15/2013HouseHouse Floor Amendment No. 2 Referred to Rules Committee 3/19/2013HouseHouse Floor Amendment No. 2 Recommends Be Adopted Rules Committee; 004-000-000 3/19/2013HouseHouse Floor Amendment No. 3 Filed with Clerk by Rep. Robyn Gabel 3/19/2013HouseHouse Floor Amendment No. 3 Referred to Rules Committee 3/19/2013HouseAdded Co-Sponsor Rep. Lawrence M. Walsh, Jr. 4/12/2013HouseHouse Floor Amendment No. 4 Filed with Clerk by Rep. Robyn Gabel 4/12/2013HouseHouse Floor Amendment No. 4 Referred to Rules Committee 4/17/2013HouseSecond Reading - Short Debate 4/17/2013HouseHouse Floor Amendment No. 2 Adopted 4/17/2013HousePlaced on Calendar Order of 3rd Reading - Short Debate 4/18/2013HouseAdded Co-Sponsor Rep. Daniel V. Beiser 4/18/2013HouseThird Reading - Short Debate - Passed 115-000-000 4/18/2013HouseHouse Floor Amendment No. 3 Tabled Pursuant to Rule 40 4/18/2013HouseHouse Floor Amendment No. 4 Tabled Pursuant to Rule 40 4/18/2013HouseAdded Co-Sponsor Rep. Al Riley 4/18/2013HouseAdded Co-Sponsor Rep. Kenneth Dunkin 4/19/2013SenateArrive in Senate 4/19/2013SenatePlaced on Calendar Order of First Reading 4/19/2013SenateChief Senate Sponsor Sen. Heather A. Steans 4/19/2013SenateFirst Reading 4/19/2013SenateReferred to Assignments 4/23/2013SenateAdded as Alternate Chief Co-Sponsor Sen. John G. Mulroe 4/23/2013SenateAdded as Alternate Chief Co-Sponsor Sen. Ira I. Silverstein 4/24/2013SenateAdded as Alternate Co-Sponsor Sen. John J. Cullerton 4/24/2013SenateAssigned to Public Health 4/29/2013SenateSenate Committee Amendment No. 1 Filed with Secretary by Sen. Heather A. Steans 4/29/2013SenateSenate Committee Amendment No. 1 Referred to Assignments 4/30/2013SenateAdded as Alternate Co-Sponsor Sen. Mattie Hunter 4/30/2013SenateSenate Committee Amendment No. 1 Assignments Refers to Public Health 4/30/2013SenateSenate Committee Amendment No. 1 Adopted 5/1/2013SenateDo Pass as Amended Public Health; 009-000-000 5/1/2013SenatePlaced on Calendar Order of 2nd Reading May 2, 2013 5/2/2013SenateAdded as Alternate Co-Sponsor Sen. Patricia Van Pelt 5/3/2013SenateAdded as Alternate Co-Sponsor Sen. William Delgado 5/7/2013SenateAdded as Alternate Co-Sponsor Sen. Pat McGuire 5/8/2013SenateAdded as Alternate Co-Sponsor Sen. Andy Manar 5/8/2013SenateSecond Reading 5/8/2013SenatePlaced on Calendar Order of 3rd Reading May 9, 2013 5/8/2013SenateAdded as Alternate Co-Sponsor Sen. John M. Sullivan 5/9/2013SenateAdded as Alternate Co-Sponsor Sen. William E. Brady 5/10/2013SenateAdded as Alternate Co-Sponsor Sen. Michael E. Hastings 5/15/2013SenateAdded as Alternate Co-Sponsor Sen. Chapin Rose 5/15/2013SenateAdded as Alternate Co-Sponsor Sen. Emil Jones, III 5/21/2013SenateAdded as Alternate Co-Sponsor Sen. Linda Holmes 5/22/2013SenateAdded as Alternate Co-Sponsor Sen. Jacqueline Y. Collins 5/22/2013SenateSponsor Removed Sen. Mattie Hunter 5/22/2013SenateAdded as Alternate Chief Co-Sponsor Sen. Mattie Hunter 5/22/2013SenateAdded as Alternate Chief Co-Sponsor Sen. Wm. Sam McCann 5/22/2013SenateThird Reading - Passed; 057-001-000 5/22/2013HouseArrived in House 5/22/2013HousePlaced on Calendar Order of Concurrence Senate Amendment(s) 1 5/22/2013HouseSenate Committee Amendment No. 1 Motion Filed Concur Rep. Robyn Gabel 5/22/2013HouseSenate Committee Amendment No. 1 Motion to Concur Referred to Rules Committee 5/27/2013HouseSenate Committee Amendment No. 1 Motion to Concur Rules Referred to Human Services Committee 5/28/2013HouseSenate Committee Amendment No. 1 Motion to Concur Recommends Be Adopted Human Services Committee; 008-000-000 5/28/2013HouseAdded Co-Sponsor Rep. Elgie R. Sims, Jr. 5/29/2013HouseSenate Committee Amendment No. 1 House Concurs 117-000-000 5/29/2013HouseHouse Concurs 5/29/2013HousePassed Both Houses 6/19/2013HouseSent to the Governor 8/16/2013HouseGovernor Approved 8/16/2013HouseEffective Date August 16, 2013 8/16/2013HousePublic Act . . . . . . . . . 98-0440