NEWBORN-SCREENING TESTS Senate SponsorsSen. Dale A. Righter-Heather A. Steans-A. J. Wilhelmi-Linda Holmes-William Delgado, Kirk W. Dillard, M. Maggie Crotty, Iris Y. Martinez, Donne E. Trotter and Mattie Hunter House Sponsors(Rep. JoAnn D. Osmond-Derrick Smith-Patricia R. Bellock, Jack McGuire, Mark H. Beaubien, Jr., Renée Kosel, Michael G. Connelly, Jason Barickman, Franco Coladipietro, Michael Unes, Keith P. Sommer, Anthony DeLuca, Jil Tracy and Esther Golar) 8/23/2011SenatePublic Act . . . . . . . . . 97-0532 410 ILCS 240/2from Ch. 111 1/2, par. 4904Amends the Newborn Metabolic Screening Act. Provides that the Department of Public Health shall provide newborns with expanded screening tests for the presence of Mucopolysaccharidosis I (Hurler disease), Mucopolysaccharidosis II (Hunters disease), and Severe Combined Immunodeficiency Syndrome (SCIDS). Provides that if the Department is unable to provide expanded screening for SCIDS using the State Laboratory within 180 days after the effective date of the amendatory Act, then the Department shall temporarily provide the screening through an accredited laboratory selected by the Department until the Department has the capacity to provide screening through the State Laboratory. Permits the Department to substitute the fee charged by the accredited laboratory, plus a 5% surcharge for documentation and handling for the fee authorized if expanded screening is provided on a temporary basis through an accredited laboratory. Effective immediately.Senate Floor Amendment No. 1 Provides that the Department of Public Health shall provide newborns with expanded screening tests beginning 90 days (instead of 30 days) after the effective date of the amendatory Act.House Floor Amendment No. 1 Replaces everything after the enacting clause. Amends the Newborn Metabolic Screening Act. Provides that the Department of Public Health shall provide all newborns with expanded screening tests for the presence of (1) certain Lysosomal Storage Disorders known as Krabbe, Pompe, Gaucher, Fabry, and Niemann-Pick, (2) Severe Combined Immunodeficiency Disease (SCID), and (3) Mucopolysaccharidosis I (Hurlers) and Mucopolysaccharidosis II (Hunters). Provides that testing for each respective disorder or disease shall begin within 6 months or 12 months, depending on the disorder or disease, following the occurrence of certain events. Provides that the Department is authorized to implement an additional fee for the screening prior to beginning the testing in order to accumulate the resources for start-up and other costs associated with implementation of the screening and thereafter to support the costs associated with screening and follow-up programs for the disorder or disease. Makes other changes. Effective immediately. 2/9/2011SenateFiled with Secretary by Sen. Dale A. Righter 2/9/2011SenateFirst Reading 2/9/2011SenateReferred to Assignments 2/15/2011SenateAdded as Chief Co-Sponsor Sen. Heather A. Steans 2/17/2011SenateAdded as Chief Co-Sponsor Sen. A. J. Wilhelmi 2/23/2011SenateAssigned to Public Health 3/2/2011SenateAdded as Chief Co-Sponsor Sen. Linda Holmes 3/9/2011SenateDo Pass Public Health; 010-000-000 3/9/2011SenatePlaced on Calendar Order of 2nd Reading March 10, 2011 3/10/2011SenateAdded as Chief Co-Sponsor Sen. William Delgado 3/15/2011SenateSecond Reading 3/15/2011SenatePlaced on Calendar Order of 3rd Reading March 16, 2011 4/11/2011SenateSenate Floor Amendment No. 1 Filed with Secretary by Sen. Dale A. Righter 4/11/2011SenateSenate Floor Amendment No. 1 Referred to Assignments 4/12/2011SenateSenate Floor Amendment No. 1 Assignments Refers to Public Health 4/12/2011SenateSenate Floor Amendment No. 1 Recommend Do Adopt Public Health; 007-000-000 4/14/2011SenateRecalled to Second Reading 4/14/2011SenateSenate Floor Amendment No. 1 Adopted; Righter 4/14/2011SenatePlaced on Calendar Order of 3rd Reading 4/14/2011SenateAdded as Co-Sponsor Sen. Kirk W. Dillard 4/14/2011SenateAdded as Co-Sponsor Sen. M. Maggie Crotty 4/14/2011SenateThird Reading - Passed; 058-000-000 4/14/2011HouseArrived in House 4/14/2011HousePlaced on Calendar Order of First Reading 4/14/2011HouseChief House Sponsor Rep. JoAnn D. Osmond 4/14/2011HouseFirst Reading 4/14/2011HouseReferred to Rules Committee 4/21/2011HouseAssigned to Human Services Committee 5/3/2011HouseAdded Alternate Co-Sponsor Rep. Jack McGuire 5/3/2011HouseAdded Alternate Co-Sponsor Rep. Mark H. Beaubien, Jr. 5/11/2011HouseDo Pass / Short Debate Human Services Committee; 011-000-000 5/11/2011HousePlaced on Calendar 2nd Reading - Short Debate 5/11/2011HouseAdded Alternate Chief Co-Sponsor Rep. Derrick Smith 5/11/2011HouseAdded Alternate Chief Co-Sponsor Rep. Patricia R. Bellock 5/11/2011HouseAdded Alternate Co-Sponsor Rep. Renée Kosel 5/11/2011HouseAdded Alternate Co-Sponsor Rep. Michael G. Connelly 5/11/2011HouseAdded Alternate Co-Sponsor Rep. Jason Barickman 5/11/2011HouseAdded Alternate Co-Sponsor Rep. Franco Coladipietro 5/11/2011HouseAdded Alternate Co-Sponsor Rep. Michael Unes 5/11/2011HouseAdded Alternate Co-Sponsor Rep. Keith P. Sommer 5/11/2011HouseAdded Alternate Co-Sponsor Rep. Anthony DeLuca 5/11/2011HouseAdded Alternate Co-Sponsor Rep. Jil Tracy 5/17/2011HouseHouse Floor Amendment No. 1 Filed with Clerk by Rep. JoAnn D. Osmond 5/17/2011HouseHouse Floor Amendment No. 1 Referred to Rules Committee 5/18/2011HouseHouse Floor Amendment No. 1 Recommends Be Adopted Rules Committee; 004-000-000 5/18/2011HouseSecond Reading - Short Debate 5/18/2011HouseHouse Floor Amendment No. 1 Adopted by Voice Vote 5/18/2011HousePlaced on Calendar Order of 3rd Reading - Short Debate 5/19/2011HouseThird Reading - Short Debate - Passed 116-000-000 5/19/2011HouseAdded Alternate Co-Sponsor Rep. Esther Golar 5/19/2011SenateSecretary's Desk - Concurrence House Amendment(s) 1 5/19/2011SenatePlaced on Calendar Order of Concurrence House Amendment(s) 1 - May 20, 2011 5/20/2011SenateHouse Floor Amendment No. 1 Motion to Concur Filed with Secretary Sen. Dale A. Righter 5/20/2011SenateHouse Floor Amendment No. 1 Motion to Concur Referred to Assignments 5/24/2011SenateHouse Floor Amendment No. 1 Motion to Concur Assignments Referred to Executive 5/25/2011SenateHouse Floor Amendment No. 1 Motion To Concur Recommended Do Adopt Executive; 013-000-000 5/25/2011SenateAdded as Co-Sponsor Sen. Iris Y. Martinez 5/26/2011SenateAdded as Co-Sponsor Sen. Donne E. Trotter 5/26/2011SenateAdded as Co-Sponsor Sen. Mattie Hunter 5/26/2011SenateHouse Floor Amendment No. 1 Senate Concurs 058-000-000 5/26/2011SenatePassed Both Houses 6/24/2011SenateSent to the Governor 8/23/2011SenateGovernor Approved 8/23/2011SenateEffective Date August 23, 2011 8/23/2011SenatePublic Act . . . . . . . . . 97-0532