HR0274

LRB096 10901 GRL 21144 r






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HOUSE RESOLUTION


 
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    WHEREAS, Children's interstitial lung disease includes a 
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group of rare life-threatening lung diseases in children that 
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may lead to progressive, incurable lung scarring or life-long 
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lung problems; and

 
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    WHEREAS, Certain children's interstitial lung diseases can 
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progress quickly, often causing disability or death within 
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first two years of life; and

 
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    WHEREAS, Children's interstitial lung diseases are one of 
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the leading causes of lung transplantation in children, due to 
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scarring and an irreversible loss of the lung tissue's ability 
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to transport oxygen; and

 
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    WHEREAS, Children's interstitial lung disease is not the 
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same as adult interstitial lung disease; and

 
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    WHEREAS, Children's interstitial lung diseases are caused 
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by poorly understood genetic abnormalities that affect 
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families, infection, bleeding in the lungs, autoimmune 
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diseases, or abnormal lung development; and

 
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    WHEREAS, Children's interstitial lung diseases are often 
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mis-diagnosed or under-diagnosed; and

 
 


 






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    WHEREAS, There is no proven cure or treatment for 
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children's interstitial lung diseases; and
 
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    WHEREAS, Limited funding is available for these rare lung 
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problems in children; and

 
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    WHEREAS, A need has been identified to increase research 
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funding, awareness, and detection of these mis-diagnosed and 
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under-diagnosed disorders, as well as all incarnations of 
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children's interstitial lung disease; therefore, be it

 
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    RESOLVED, BY THE  HOUSE OF REPRESENTATIVES OF THE 
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NINETY-SIXTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we 
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recognize the need to pursue research into the causes, a 
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treatment, and an eventual cure for children's interstitial 
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lung disease; and be it further

 
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    RESOLVED, That we support the work of advocates and 
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organizations in educating, supporting, and providing hope for 
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individuals who suffer from children's interstitial lung 
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disease; and be it further
 
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    RESOLVED, That we congratulate advocates and organizations 
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for their efforts to educate the public about children's 
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interstitial lung disease, while funding research to help find 
 


 






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a cure for this disorder; and be it further
 
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    RESOLVED, That we designate the first week of May as 
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Children's Interstitial Lung Disease Awareness Week in the 
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State of Illinois.