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| 1 | AN ACT concerning health.
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| 2 | Be it enacted by the People of the State of Illinois,
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| 3 | represented in the General Assembly:
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| 4 | Section 1. Short title. This Act may be cited as the Family | ||||||||||||||||||||||||||||
| 5 | Case Management Act. | ||||||||||||||||||||||||||||
| 6 | Section 5. Legislative findings and purpose. The General | ||||||||||||||||||||||||||||
| 7 | Assembly finds as follows: | ||||||||||||||||||||||||||||
| 8 | (1) The statewide rate of infant mortality continues to | ||||||||||||||||||||||||||||
| 9 | remain at an unacceptable level in regard to the national | ||||||||||||||||||||||||||||
| 10 | average.
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| 11 | (2) Within the State of Illinois, certain areas and | ||||||||||||||||||||||||||||
| 12 | populations continue to experience rates of infant | ||||||||||||||||||||||||||||
| 13 | mortality far greater than either the statewide or national | ||||||||||||||||||||||||||||
| 14 | averages.
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| 15 | (3) Family case management services are proven to be | ||||||||||||||||||||||||||||
| 16 | effective in improving the health of women and infants and | ||||||||||||||||||||||||||||
| 17 | in lowering the incidence of infant mortality and | ||||||||||||||||||||||||||||
| 18 | morbidity, particularly those individuals linked to the | ||||||||||||||||||||||||||||
| 19 | Special Supplemental Nutrition Program for Women, Infants | ||||||||||||||||||||||||||||
| 20 | and Children (WIC).
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| 21 | (4) Family case management improves the health and | ||||||||||||||||||||||||||||
| 22 | development of children and families by providing the | ||||||||||||||||||||||||||||
| 23 | earliest identification of their needs and promoting | ||||||||||||||||||||||||||||
| 24 | linkages to address those needs.
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| 25 | (5) Data demonstrates significantly lower Medicaid | ||||||||||||||||||||||||||||
| 26 | expenditures for pregnant and postpartum women and | ||||||||||||||||||||||||||||
| 27 | children who have been enrolled in family case management | ||||||||||||||||||||||||||||
| 28 | services than for Medicaid-eligible persons not receiving | ||||||||||||||||||||||||||||
| 29 | case management services. | ||||||||||||||||||||||||||||
| 30 | Therefore, as a critical component in delivering | ||||||||||||||||||||||||||||
| 31 | comprehensive maternal and child health services in Illinois, | ||||||||||||||||||||||||||||
| 32 | it is the purpose of this Act to provide for the establishment | ||||||||||||||||||||||||||||
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| 1 | and recognition of a program of family case management to | ||||||
| 2 | ensure and provide wrap-around services targeted toward those | ||||||
| 3 | areas and populations within the State that continue to | ||||||
| 4 | experience high rates of infant mortality and morbidity.
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| 5 | Section 10. Definitions. In this Act: | ||||||
| 6 | "Department" means the Department of Human Services.
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| 7 | "Eligible participant" means, at a minimum, any pregnant | ||||||
| 8 | woman or child through the age of 4 years enrolled in the | ||||||
| 9 | program of medical assistance under Article V of the Illinois | ||||||
| 10 | Public Aid Code or whose income is less than 200% of the | ||||||
| 11 | federal poverty level.
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| 12 | "Eligible organization" includes a unit of local | ||||||
| 13 | government, a public health agency, and a private nonprofit | ||||||
| 14 | health or human service agency.
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| 15 | "Family case management program" or "program" means the | ||||||
| 16 | program established under Section 15. | ||||||
| 17 | "Infant mortality rate" means the number of infant deaths | ||||||
| 18 | per 1,000 live births as reported on a calendar year basis by | ||||||
| 19 | the federal Department of Health and Human Services.
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| 20 | "Secretary" means the Secretary of Human Services.
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| 21 | Section 15. Family case management program. The Department | ||||||
| 22 | shall establish and administer a family case management | ||||||
| 23 | program. The purpose of the program shall be to help low-income | ||||||
| 24 | families obtain available health and human services needed for | ||||||
| 25 | healthy growth and development, including but not limited to | ||||||
| 26 | immunizations, lead screenings, nutritional support, and other | ||||||
| 27 | specialized services for families with additional challenges | ||||||
| 28 | and needs. Under the program, case management shall involve | ||||||
| 29 | individualized assessment of needs, planning of services, | ||||||
| 30 | referral, monitoring, and advocacy to assist a client in | ||||||
| 31 | gaining access to appropriate services. Under the program, case | ||||||
| 32 | management shall be an active and collaborative process | ||||||
| 33 | involving a qualified case manager, the client, the client's | ||||||
| 34 | family, and service providers in the community. | ||||||
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| 1 | Section 20. Maternal and Child Health Advisory Board. | ||||||
| 2 | (a) The Maternal and Child Health Advisory Board ("the | ||||||
| 3 | Board") is created within the Department to advise the | ||||||
| 4 | Department on the implementation of this Act and other | ||||||
| 5 | activities related to maternal and child health and infant | ||||||
| 6 | mortality reduction programs in the State of Illinois. The | ||||||
| 7 | Board shall consist of: the Secretary (or his or her designee), | ||||||
| 8 | who shall serve as chairman, and one additional representative | ||||||
| 9 | of the Department designated by the Secretary; one | ||||||
| 10 | representative each from the Departments of Children and Family | ||||||
| 11 | Services, Public Health, and Public Aid; a representative from | ||||||
| 12 | the University of Illinois' Division of Specialized Care for | ||||||
| 13 | Children; a representative from the State Board of Education; | ||||||
| 14 | and 4 members of the Illinois General Assembly, one each | ||||||
| 15 | appointed by the President and Minority Leader of the Senate | ||||||
| 16 | and the Speaker and Minority Leader of the House of | ||||||
| 17 | Representatives. In addition, the Governor shall appoint 12 | ||||||
| 18 | additional members of the Board. Of the members appointed by | ||||||
| 19 | the Governor: 2 shall be physicians licensed to practice | ||||||
| 20 | medicine in all of its branches, one of whom shall be an | ||||||
| 21 | individual with a specialty in obstetrics and gynecology and | ||||||
| 22 | one of whom shall be an individual with a specialty in | ||||||
| 23 | pediatric medicine; one shall be an individual representing | ||||||
| 24 | hospitals licensed in Illinois; one shall be a representative | ||||||
| 25 | from a local health department; one shall be a social worker; | ||||||
| 26 | one shall be a nutritionist; one shall be a registered | ||||||
| 27 | professional nurse; 3 shall be individuals involved in programs | ||||||
| 28 | to reduce infant mortality; and 2 shall be members of the | ||||||
| 29 | general public.
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| 30 | Legislative members of the Board shall serve during their | ||||||
| 31 | term of office in the Illinois General Assembly. Members | ||||||
| 32 | appointed by the Governor shall serve a term of 3 years or | ||||||
| 33 | until their successors are appointed. Any member appointed to | ||||||
| 34 | fill a vacancy occurring prior to the expiration of the term | ||||||
| 35 | for which his or her predecessor was appointed shall be | ||||||
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| 1 | appointed for the remainder of such term. Members of the Board | ||||||
| 2 | shall serve without compensation but shall be reimbursed for | ||||||
| 3 | necessary expenses incurred in the performance of their duties.
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| 4 | (b) The Board shall advise the Secretary on efforts related | ||||||
| 5 | to maternal and child health programs, including infant | ||||||
| 6 | mortality reduction, in the State of Illinois. In addition, the | ||||||
| 7 | Board shall review and make recommendations to the Department | ||||||
| 8 | and the Governor in regard to the system for maternal and child | ||||||
| 9 | health programs, collaboration, interrelation between and | ||||||
| 10 | delivery of programs including but not limited to Family Case | ||||||
| 11 | Management, Targeted Intensive Prenatal Case Management, | ||||||
| 12 | KidCare, Healthy Families Illinois and HealthWorks. In | ||||||
| 13 | performing its duties, the Board may hold hearings throughout | ||||||
| 14 | the State and advise and receive advice from any local advisory | ||||||
| 15 | bodies created to address the infant mortality problem.
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| 16 | (c) The Board shall report to the General Assembly, on or | ||||||
| 17 | before April 15 of each year, a
description of the activities | ||||||
| 18 | conducted pursuant to this Act and other efforts to address | ||||||
| 19 | maternal and child health and infant mortality in Illinois. | ||||||
| 20 | Section 25. Rules. Within one year after the effective date | ||||||
| 21 | of this Act, the Department shall adopt rules to implement this | ||||||
| 22 | Act. In developing the rules, the Department shall consult with | ||||||
| 23 | and obtain the approval of the Maternal and Child Health | ||||||
| 24 | Advisory Board. | ||||||
| 25 | Section 90. The Infant Mortality Reduction Act is amended | ||||||
| 26 | by changing Section 7 as follows:
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| 27 | (410 ILCS 220/7) (from Ch. 111 1/2, par. 7007)
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| 28 | Sec. 7. Advisory board consultation. For the purpose of | ||||||
| 29 | receiving advice and recommendations concerning infant | ||||||
| 30 | mortality programs, the Department shall consult with the | ||||||
| 31 | Maternal and Child Health Advisory Board created under the | ||||||
| 32 | Family Case Management Act. The Infant Mortality Reduction | ||||||
| 33 | Advisory Board is abolished.
(a) There is created within the | ||||||
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| 1 | Department an Infant
Mortality Reduction Advisory Board to | ||||||
| 2 | advise the Department on the
implementation of this Act and | ||||||
| 3 | other activities related to the reduction of
infant mortality | ||||||
| 4 | in the State of Illinois. The Board shall consist of the
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| 5 | Secretary of Human Services (or his or her designee), who shall | ||||||
| 6 | serve as
chairman, and one additional representative
of the | ||||||
| 7 | Department of Human Services designated by the Secretary; one
| ||||||
| 8 | representative each from the Departments of
Children and Family | ||||||
| 9 | Services, Public Health, and Public Aid;
a representative from | ||||||
| 10 | the University of Illinois'
Division of Specialized Care for | ||||||
| 11 | Children; a
representative from the State Board of Education | ||||||
| 12 | and 4 members of the
Illinois General Assembly, one each | ||||||
| 13 | appointed by the President and Minority
Leader of the Senate | ||||||
| 14 | and the Speaker and Minority Leader of the House of
| ||||||
| 15 | Representatives. In addition, the Governor shall appoint 4 | ||||||
| 16 | physicians
licensed to practice medicine in all of its | ||||||
| 17 | branches, one of whom shall be
an individual with a specialty | ||||||
| 18 | in obstetrics and gynecology, one of whom
shall be an | ||||||
| 19 | individual with a specialty in perinatal medicine, one of whom
| ||||||
| 20 | shall be an individual with a specialty in neonatal medicine | ||||||
| 21 | and one of
whom shall be an individual with a specialty in | ||||||
| 22 | pediatrics; the director of
a perinatal center; a hospital | ||||||
| 23 | administrator; a representative from a local
health | ||||||
| 24 | department; a social worker; a nutritionist; a registered
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| 25 | professional nurse; 4 individuals involved in programs to | ||||||
| 26 | reduce infant
mortality and 2 public members, one of whom shall | ||||||
| 27 | be a senior citizen 60
years of age or older.
| ||||||
| 28 | Each legislative member shall serve during his term of | ||||||
| 29 | office in the
Illinois General Assembly. Each member appointed | ||||||
| 30 | by the Governor shall
serve a term of 3 years or until his | ||||||
| 31 | successor is appointed. Any member
appointed to fill a vacancy | ||||||
| 32 | occurring prior to the expiration of the term
for which his | ||||||
| 33 | predecessor was appointed shall be appointed for the
remainder | ||||||
| 34 | of such term. Members of the Board shall serve without
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| 35 | compensation but shall be reimbursed for necessary expenses | ||||||
| 36 | incurred in
the performance of their duties.
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| 1 | (b) The Board shall advise the Secretary on efforts to
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| 2 | reduce infant mortality in the State of Illinois. In addition, | ||||||
| 3 | the Board shall
review the formula developed pursuant to | ||||||
| 4 | Section 4 and make such
recommendations as it deems | ||||||
| 5 | appropriate. In performing its duties the
Board may hold | ||||||
| 6 | hearings throughout the State and advise and receive advice
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| 7 | from any local advisory bodies created to address the infant | ||||||
| 8 | mortality problem.
| ||||||
| 9 | (c) The Board shall report to the General Assembly on or | ||||||
| 10 | before April
15th of each year, a listing of activities taken | ||||||
| 11 | to address infant
mortality and a annual summary of data | ||||||
| 12 | collected under Section 4 of this Act.
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| 13 | (Source: P.A. 89-507, eff. 7-1-97.)
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| 14 | Section 95. The Prenatal and Newborn Care Act is amended by | ||||||
| 15 | changing Section 7 as follows:
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| 16 | (410 ILCS 225/7) (from Ch. 111 1/2, par. 7027)
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| 17 | Sec. 7. Advisory board consultation. The Department shall | ||||||
| 18 | consult
with the Maternal and Child Health Advisory Board | ||||||
| 19 | created under the Family Case Management Act
the Infant | ||||||
| 20 | Mortality Reduction Advisory Board, established pursuant to
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| 21 | the Infant Mortality Reduction Act, as amended, regarding the
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| 22 | implementation of this program. In addition, the Board shall | ||||||
| 23 | advise the
Department on the coordination of services provided | ||||||
| 24 | under this program with
services provided under the Infant | ||||||
| 25 | Mortality Reduction Act and the Problem
Pregnancy Health | ||||||
| 26 | Services and Care Act.
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| 27 | (Source: P.A. 86-860.)
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| 28 | Section 999. Effective date. This Act takes effect upon | ||||||
| 29 | becoming law.
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