Bill Status of HB 2541   104th General Assembly

Short Description:  PRADER-WILLI SYNDROME

House Sponsors
Rep. Nicole La Ha-Jennifer Sanalitro, Michelle Mussman, Tony M. McCombie, Norine K. Hammond, Jed Davis, Kevin Schmidt, Brad Stephens, Brandun Schweizer, Michael J. Coffey, Jr., Lindsey LaPointe, Terra Costa Howard, Kelly M. Cassidy, Diane Blair-Sherlock and Maura Hirschauer

Last Action  View All Actions

DateChamber Action
  3/21/2025HouseRule 19(a) / Re-referred to Rules Committee

Statutes Amended In Order of Appearance
5 ILCS 70/1.42
20 ILCS 1705/3.5 new
405 ILCS 5/1-106from Ch. 91 1/2, par. 1-106
405 ILCS 80/2-3from Ch. 91 1/2, par. 1802-3

Synopsis As Introduced
Amends the Mental Health and Developmental Disabilities Code. Expands the definition of "developmental disability" to include a disability attributable to Prader-Willi syndrome. Amends the Developmental Disability and Mental Disability Services Act. Expands the definition of "severe and multiple impairments" to include a substantial disability attributable to Prader-Willi syndrome. Exempts persons diagnosed with Prader-Willi syndrome from any assessment or evaluation to measure cognitive functioning or IQ for purposes of making determinations on whether such persons have severe and multiple impairments eligible for home-based and community-based services. Amends the Mental Health and Developmental Disabilities Administrative Act. Requires the Department of Human Services to include Prader-Willi syndrome as a developmental disability in any rule defining the term "developmental disability" and in any rule listing specific medical conditions or disabilities eligible for developmental disability services provided by the Department. Amends the Statute on Statutes. Provides that, except where the context indicates otherwise: (i) in any rule, contract, or other document the term "developmental disability" shall include a disability attributable to Prader-Willi syndrome; and (ii) whenever there is a reference in any Act to "development disability" the term shall be construed to include a disability attributable to Prader-Willi syndrome.

Actions 
DateChamber Action
  2/4/2025HouseFiled with the Clerk by Rep. Nicole La Ha
  2/4/2025HouseFirst Reading
  2/4/2025HouseReferred to Rules Committee
  2/11/2025HouseAdded Chief Co-Sponsor Rep. Jennifer Sanalitro
  2/14/2025HouseAdded Co-Sponsor Rep. Michelle Mussman
  2/24/2025HouseAdded Co-Sponsor Rep. Tony M. McCombie
  2/25/2025HouseAdded Co-Sponsor Rep. Norine K. Hammond
  2/25/2025HouseAdded Co-Sponsor Rep. Jed Davis
  2/25/2025HouseAdded Co-Sponsor Rep. Kevin Schmidt
  2/25/2025HouseAdded Co-Sponsor Rep. Brad Stephens
  2/25/2025HouseAdded Co-Sponsor Rep. Brandun Schweizer
  2/26/2025HouseAdded Co-Sponsor Rep. Michael J. Coffey, Jr.
  3/4/2025HouseAssigned to Human Services Committee
  3/6/2025HouseAdded Co-Sponsor Rep. Lindsey LaPointe
  3/12/2025HouseAdded Co-Sponsor Rep. Terra Costa Howard
  3/12/2025HouseAdded Co-Sponsor Rep. Kelly M. Cassidy
  3/12/2025HouseAdded Co-Sponsor Rep. Diane Blair-Sherlock
  3/12/2025HouseHouse Committee Amendment No. 1 Filed with Clerk by Rep. Nicole La Ha
  3/12/2025HouseHouse Committee Amendment No. 1 Referred to Rules Committee
  3/13/2025HouseHouse Committee Amendment No. 1 Rules Refers to Human Services Committee
  3/21/2025HouseRule 19(a) / Re-referred to Rules Committee
  3/21/2025HouseHouse Committee Amendment No. 1 Rule 19(c) / Re-referred to Rules Committee
  3/28/2025HouseAdded Co-Sponsor Rep. Maura Hirschauer

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