Bill Status of EO 2502   104th General Assembly


Short Description:  AUTISM-RELATED PROTECTIONS

Sponsors
Governor

Last Action  View All Actions

DateChamber Action
  5/7/2025SenateFiled with the Secretary of State

Synopsis As Introduced
Directs agencies under the Governor's control to work to ensure that they are not collecting (or using data scraping technology to gather) autism-related data unless doing so fully complies with the Health Insurance Portability and Accountability Act (HIPAA) and the Mental Health and Developmental Disabilities Confidentiality Act (MHDDCA) and is strictly necessary for: (i) the administration of a State or federal benefits program, including payment and reimbursement, providing benefits or ensuring equality of opportunity, participation, or accessibility; (ii) the provision of medical or specialized care or services; (iii) the audit or evaluation of a federal-supported or State-supported education program or enforcement and compliance with federal or State legal requirements related to such a program; or (iv) compliance with established Illinois or federal law. Specifies that contractors, grantees, and vendors acting on behalf of agencies under the Governor's control shall be held to the same privacy and data protection standards and shall not collect, store, or disclose autism-related data outside the parameters of the executive order. Provides that no State agency shall disclose personally identifiable autism-related data to any entity outside the State of Illinois government unless: (i) the individual (or the individual's legal guardian) provides informed, written consent for a specific use; (ii) it is required to do so by court order or subpoena from a court of competent jurisdiction; (iii) it is required to do so to provide educational, medical, employment, housing, or other essential services and supports to an autistic individual; or (iv) it is required to do so to comply with established Illinois or federal law. Specifies that the executive order is not to be construed to weaken or supersede any rights or protections guaranteed under federal and State law. Requires the Governor's Office to conduct biennial reviews of compliance with the executive order and recommend additional safeguards as necessary to protect personally identifiable information and to support the use of deidentified data for credible research. Authorizes the Deputy Governor for Health and Human Services to appoint an Autism Data Privacy Advisory Group to discuss implementation and provide recommendations on improvements or updates to the executive order. Defines "autism-related data" and "informed consent". Specifies that the provisions of the executive order are severable. Effective May 7, 2025.

Actions 
DateChamber Action
  5/7/2025SenateFiled with the Secretary of State

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