PEDIATRIC PALLIATIVE CARE Senate SponsorsSen. Laura Fine-Julie A. Morrison, Dale Fowler, Sara Feigenholtz and Laura M. Murphy House Sponsors(Rep. Robyn Gabel, Margaret Croke, Elizabeth Hernandez, Jonathan Carroll, Jehan Gordon-Booth, Keith R. Wheeler and Robert Rita) 8/27/2021SenatePublic Act . . . . . . . . . 102-0655 305 ILCS 5/5-5from Ch. 23, par. 5-5305 ILCS 60/5305 ILCS 60/10305 ILCS 60/15305 ILCS 60/20305 ILCS 60/25305 ILCS 60/30305 ILCS 60/35305 ILCS 60/37 new305 ILCS 60/40305 ILCS 60/45305 ILCS 60/3 rep.Amends the Illinois Public Aid Code. Provides that the medical assistance program shall cover community-based pediatric palliative care from a trained interdisciplinary team. Amends the Pediatric Palliative Care Act. Repeals a provision that made the Act inoperative on and after July 1, 2012. Requires the Department of Healthcare and Family Services to develop a pediatric palliative care program (rather than a pediatric palliative care pilot program) under which a qualifying child may receive community-based pediatric palliative care from a trained interdisciplinary team and may also choose to continue to pursue aggressive curative or disease-directed treatments for a serious (rather than a potentially life-limiting) illness under the benefits available under the Illinois Public Aid Code. Defines a qualifying child to be a person under the age of 19 (rather than 18) who is enrolled in the medical assistance program and suffers from a serious illness (rather than a potentially life-limiting medical condition). Contains provisions concerning a State Plan amendment; prohibited Department rules; pediatric interdisciplinary teams; reimbursable services offered under the pediatric palliative care program; standards for and technical assistance to managed care organizations; reporting requirements; criteria a case manager must meet for demonstrated expertise in pediatric palliative care; and other matters.House Floor Amendment No. 2 Replaces everything after the enacting clause. Reinserts the provisions of the engrossed bill with the following changes to the Pediatric Palliative Care Act. Makes changes to the definition of "serious illness". Restores language requiring the Department of Healthcare and Family Services to apply for a waiver to implement the pediatric palliative care program. Defines a qualifying child to be a person under the age of 21 who is enrolled in the medical assistance program and is diagnosed by the child's primary physician or specialist as suffering from a serious illness (rather than a person under 19 years of age who is enrolled in the medical assistance program and suffers from a serious illness). Provides that those serious illnesses that render a child eligible for pediatric palliative care services include any other serious illness that the Department, in consultation with interested stakeholders, determines to be appropriate. Restores language making certain reimbursable services offered under the pediatric palliative care program subject to federal approval for matching funds. Changes "case manager" to "program manager". Changes "qualifying participants" to "qualifying children". 2/26/2021SenateFiled with Secretary by Sen. Laura Fine 2/26/2021SenateFirst Reading 2/26/2021SenateReferred to Assignments 3/4/2021SenateAdded as Chief Co-Sponsor Sen. Julie A. Morrison 3/23/2021SenateAssigned to Health 3/31/2021SenateTo Subcommittee on Medicaid 4/7/2021SenateReported Back To Health; 005-000-000 4/14/2021SenateDo Pass Health; 014-000-000 4/14/2021SenatePlaced on Calendar Order of 2nd Reading April 15, 2021 4/19/2021SenateAdded as Co-Sponsor Sen. Dale Fowler 4/20/2021SenateAdded as Co-Sponsor Sen. Sara Feigenholtz 4/20/2021SenateSecond Reading 4/20/2021SenatePlaced on Calendar Order of 3rd Reading ** April 21, 2021 4/23/2021SenateThird Reading - Passed; 058-000-000 4/26/2021HouseArrived in House 4/26/2021HouseChief House Sponsor Rep. Robyn Gabel 4/27/2021HouseFirst Reading 4/27/2021HouseReferred to Rules Committee 5/4/2021HouseAssigned to Executive Committee 5/5/2021HouseAdded Alternate Co-Sponsor Rep. Margaret Croke 5/12/2021HouseAdded Alternate Co-Sponsor Rep. Elizabeth Hernandez 5/15/2021HouseRule 19(a) / Re-referred to Rules Committee 5/19/2021HouseCommittee/Final Action Deadline Extended-9(b) May 28, 2021 5/19/2021HouseAssigned to Executive Committee 5/19/2021HouseHouse Committee Amendment No. 1 Filed with Clerk by Rep. Robyn Gabel 5/19/2021HouseHouse Committee Amendment No. 1 Referred to Rules Committee 5/25/2021HouseAdded Alternate Co-Sponsor Rep. Jonathan Carroll 5/25/2021HouseAdded Alternate Co-Sponsor Rep. Jehan Gordon-Booth 5/25/2021HouseAdded Alternate Co-Sponsor Rep. Keith R. Wheeler 5/25/2021HouseAdded Alternate Co-Sponsor Rep. Robert Rita 5/25/2021HouseDo Pass / Short Debate Executive Committee; 013-000-000 5/25/2021HousePlaced on Calendar 2nd Reading - Short Debate 5/25/2021HouseHouse Committee Amendment No. 1 Tabled Pursuant to Rule 40 5/26/2021HouseSecond Reading - Short Debate 5/26/2021HouseHeld on Calendar Order of Second Reading - Short Debate 5/28/2021HouseHouse Floor Amendment No. 2 Filed with Clerk by Rep. Robyn Gabel 5/28/2021HouseHouse Floor Amendment No. 2 Referred to Rules Committee 5/28/2021HouseFinal Action Deadline Extended-9(b) May 31, 2021 5/29/2021HouseHouse Floor Amendment No. 2 Recommends Be Adopted Rules Committee; 004-000-000 5/29/2021HouseHouse Floor Amendment No. 2 Adopted 5/29/2021HousePlaced on Calendar Order of 3rd Reading - Short Debate 5/29/2021HouseThird Reading - Short Debate - Passed 113-000-000 5/29/2021SenateSecretary's Desk - Concurrence House Amendment(s) 2 5/29/2021SenatePlaced on Calendar Order of Concurrence House Amendment(s) 2 - May 30, 2021 5/29/2021SenateHouse Floor Amendment No. 2 Motion to Concur Filed with Secretary Sen. Laura Fine 5/29/2021SenateHouse Floor Amendment No. 2 Motion to Concur Referred to Assignments 5/30/2021SenateHouse Floor Amendment No. 2 Motion to Concur Assignments Referred to Health 5/30/2021SenateHouse Floor Amendment No. 2 Motion To Concur Recommended Do Adopt Health; 009-000-000 5/30/2021SenateHouse Floor Amendment No. 2 Senate Concurs 058-000-000 5/30/2021SenateSenate Concurs 5/30/2021SenatePassed Both Houses 6/1/2021SenateAdded as Co-Sponsor Sen. Laura M. Murphy 6/28/2021SenateSent to the Governor 8/27/2021SenateGovernor Approved 8/27/2021SenateEffective Date January 1, 2022 8/27/2021SenatePublic Act . . . . . . . . . 102-0655