HR0011LRB101 04755 ALS 49764 r


  
1
HOUSE RESOLUTION

  
 
2    WHEREAS, The term Dystonia encompasses a broad group of 
3debilitating, incurable neurological conditions in which 
4scientists have not yet discovered a certain cause, making this 
5illness extremely difficult to diagnose; and
  
 
6    WHEREAS, Nearly 250,000 Americans are living with 
7dystonia, making it the third most common movement disorder, 
8following essential tremor and Parkinson's disease; and
  
 
9    WHEREAS, The onset of dystonia is typically seen in early 
10childhood, but it can also begin later in life during 
11adolescence and adulthood; it has a lifelong span; and
  
 
12    WHEREAS, Currently, there is no cure for dystonia, only 
13treatments to help ease symptoms, such as Botulinum toxin 
14injections, deep brain stimulation, or other surgeries; and
  
 
15    WHEREAS, Recently, the Dystonia Coalition, a clinical 
16research network for dystonia, has been established with 
17support from the National Institute of Neurological Disorders 
18and Stroke (NINDS) and the National Institutes of Health (NIH) 
19Office of Rare Disease Research as part of the Rare Disease 
20Clinical Research Network; and
  
 
 
 
HR0011- 2 -LRB101 04755 ALS 49764 r

1    WHEREAS, The Dystonia Medical Research Foundation 
2recognizes September as Dystonia Awareness Month, and a 
3nationwide effort is being made to have the White House 
4recognize September  as Dystonia Awareness Month; therefore, be 
5it
  
 
6    RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE 
7HUNDRED FIRST GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that 
8we recognize September 2019 as Dystonia Awareness Month and 
9encourage research of this devastating condition in the hope 
10that someday soon a cure is found.