PEDIATRIC PALLIATIVE CARE House SponsorsRep. Jim Durkin 1/13/2021HouseSession Sine Die 305 ILCS 5/5-5from Ch. 23, par. 5-5305 ILCS 60/5305 ILCS 60/10305 ILCS 60/15305 ILCS 60/20305 ILCS 60/25305 ILCS 60/30305 ILCS 60/35305 ILCS 60/37 new305 ILCS 60/40305 ILCS 60/45305 ILCS 60/3 rep. Amends the Illinois Public Aid Code. Provides that the medical assistance program shall cover community-based pediatric palliative care from a trained interdisciplinary team. Amends the Pediatric Palliative Care Act. Repeals a provision that made the Act inoperative on and after July 1, 2012. Requires the Department of Healthcare and Family Services to develop a pediatric palliative care program (rather than a pediatric palliative care pilot program) under which a qualifying child may receive community-based pediatric palliative care from a trained interdisciplinary team and may also choose to continue to pursue aggressive curative or disease-directed treatments for a serious (rather than a potentially life-limiting) illness under the benefits available under the Illinois Public Aid Code. Defines a qualifying child to be a person under the age of 19 (rather than 18) who is enrolled in the medical assistance program and suffers from a serious illness (rather than a potentially life-limiting medical condition). Contains provisions concerning a State Plan amendment; prohibited Department rules; pediatric interdisciplinary teams; reimbursable services offered under the pediatric palliative care program; standards for and technical assistance to managed care organizations; reporting requirements; criteria a case manager must meet for demonstrated expertise in pediatric palliative care; and other matters. 2/13/2020HouseFiled with the Clerk by Rep. Jim Durkin 2/18/2020HouseFirst Reading 2/18/2020HouseReferred to Rules Committee 3/12/2020HouseAssigned to Appropriations-Human Services Committee 6/23/2020HouseRule 19(b) / Re-referred to Rules Committee 1/13/2021HouseSession Sine Die