Public Act 0633 104TH GENERAL ASSEMBLY

SB2782 Enrolled LRB104 15930 AAS 29409 b

Public Act 104-0633

AN ACT concerning State government.

Be it enacted by the People of the State of Illinois, represented in the General Assembly:

Section 5. The Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois is amended by adding Section 2310-750 as follows:

(20 ILCS 2310/2310-750 new)

Sec. 2310-750. Sudden unexpected death in epilepsy.

(a) As used in this Section, "sudden unexpected death in epilepsy" means sudden, unexpected death in a patient with epilepsy, with or without evidence of a seizure.

(b) The Department shall undertake a public education campaign to bring broad public awareness to communities across this State of the risk of sudden unexpected death in epilepsy that is focused on providing the public with:

(1) current and evidence-based information about sudden unexpected death in epilepsy risk factors and conditions reviewed and approved by one or more professional not-for-profit organizations with expertise in neurology and epilepsy; and

(2) contact information for nonprofit organizations that provide information and support services for epilepsy conditions.

(c) The Department shall post the information listed in subsection (a) on the Department's website, with the following requirements:

(1) the Department shall ensure that the information under this Section is culturally and linguistically appropriate for all recipients;

(2) any local or national organization that provides education or services related to epilepsy conditions may request that the Department include on its website that organization's informational material and contact information; if the Department determines that the organization's informational material, contact information, or both are necessary or appropriate under this Section, the Department may include the organization's informational material, contact information, or both on its website, in written information provided under this subsection (c), or both; and

(3) the Department shall, in consultation with local and national organizations that provide education or services related to epilepsy conditions, provide guidance to health care practitioners in determining whether a patient is at elevated risk for sudden unexpected death in epilepsy, including, but not limited to, whether the patient has had convulsive seizures, the frequency and recency of such seizures, and whether the patient's symptoms have subsided in response to medicinal or surgical treatment.

(d) The Department shall adopt rules implementing this Section.