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SB3049 - 104th General Assembly
NEWBORN METABOLIC SCREENING
Last Action
Senate Sponsors
Sen. Julie A. Morrison, Mattie Hunter, Graciela Guzmán, Sara Feigenholtz, Lakesia Collins and Cristina CastroHouse Sponsors
(Rep. Martha Deuter - Jehan Gordon-Booth - Camille Y. Lilly, Michelle Mussman, Nicolle Grasse, Michael Crawford and Marcus C. Evans, Jr.)Statutes Amended In Order of Appearance
410 ILCS 240/2from Ch. 111 1/2, par. 4904
Synopsis As Introduced
Amends the Genetic and Metabolic Diseases Advisory Committee Act. Changes the name of the Genetic and Metabolic Diseases Advisory Committee to the Universal Newborn Screening Advisory Committee. Adds duties for the Committee, including duties to hold quarterly meetings, review conditions, make recommendations, and prepare reports. Makes conforming changes in the short title of the Act, the Newborn Metabolic Screening Act, and the Rare Disease Commission Act. Effective immediately.
Senate Committee Amendment No. 1
Deletes reference to:
Replaces everything after the enacting clause with the provisions of the introduced bill with the following changes. Provides that, beginning January 1, 2027, the Universal Newborn Screening Advisory Committee shall review all new conditions added to the federal Recommended Uniform Screening Panel within 12 months of the condition being added to the Panel, as long as the condition meets the requirements. Further provides that if the Panel includes conditions not screened by the State on the effective date of the amendatory Act, the Committee shall begin review of the condition no later than one year after the effective date of the Act. Deletes changes to the short title of the Genetic and Metabolic Diseases Advisory Committee Act. In provisions regarding purposes of the Committee, provides that the Committee shall carry out those purposes, as well as other duties, to include conducting reviews of conditions, making formal recommendations, and submitting annual reports to the Governor and the General Assembly. Deletes provisions regarding duties of the Committee. Deletes changes to the Rare Disease Commission Act. Makes technical changes. Deletes the effective date.
House Committee Amendment No. 1
Replaces everything after the enacting clause with the provisions of the engrossed bill with the following changes. In provisions listing duties of the Universal Newborn Screening Advisory Committee, provides that (i) if the Department of Public Health approves (rather than recommends) the addition of a condition recommended by the Committee, the Department must inform the State Laboratory within a specified time; (ii) the State Laboratory shall implement newborn screening for the approved conditions within 2 years; (iii) if the Department does not approve (rather than recommend) the condition, the Department must provide information as to why the decision was made and what gaps of information are needed for reconsideration; and (iv) the report to the Governor and the General Assembly is due by December 31, 2027 (rather than January 1, 2028). Makes technical changes. Effective immediately.
Actions
| Date | Chamber | Action |
|---|---|---|
| 1/29/2026 | Senate | Filed with Secretary by Sen. Julie A. Morrison |
| 1/29/2026 | Senate | First Reading |
| 1/29/2026 | Senate | Referred to Assignments |
| 3/03/2026 | Senate | Assigned to Public Health |
| 3/03/2026 | Senate | Senate Committee Amendment No. 1 Filed with Secretary by Sen. Julie A. Morrison |
| 3/03/2026 | Senate | Senate Committee Amendment No. 1 Referred to Assignments |
| 3/04/2026 | Senate | Senate Committee Amendment No. 1 Assignments Refers to Public Health |
| 3/10/2026 | Senate | Senate Committee Amendment No. 1 Adopted |
| 3/11/2026 | Senate | Do Pass as Amended Public Health; 010-000-000 |
| 3/11/2026 | Senate | Placed on Calendar Order of 2nd Reading March 12, 2026 |
| 3/24/2026 | Senate | Second Reading |
| 3/24/2026 | Senate | Placed on Calendar Order of 3rd Reading March 25, 2026 |
| 3/26/2026 | Senate | Added as Co-Sponsor Sen. Mattie Hunter |
| 3/27/2026 | Senate | Added as Co-Sponsor Sen. Graciela Guzmán |
| 4/13/2026 | Senate | Added as Co-Sponsor Sen. Sara Feigenholtz |
| 4/14/2026 | Senate | Placed on Calendar Order of 3rd Reading ** April 15, 2026 |
| 4/15/2026 | Senate | Added as Co-Sponsor Sen. Lakesia Collins |
| 4/16/2026 | Senate | Third Reading - Passed; 057-000-000 |
| 4/17/2026 | House | Arrived in House |
| 4/17/2026 | House | Chief House Sponsor Rep. Martha Deuter |
| 4/17/2026 | House | First Reading |
| 4/17/2026 | House | Referred to Rules Committee |
| 4/27/2026 | House | Assigned to Public Health Committee |
| 5/04/2026 | House | House Committee Amendment No. 1 Filed with Clerk by Rep. Martha Deuter |
| 5/04/2026 | House | House Committee Amendment No. 1 Referred to Rules Committee |
| 5/05/2026 | House | Added Alternate Co-Sponsor Rep. Michelle Mussman |
| 5/05/2026 | House | Added Alternate Co-Sponsor Rep. Nicolle Grasse |
| 5/05/2026 | House | Added Alternate Co-Sponsor Rep. Michael Crawford |
| 5/05/2026 | House | Added Alternate Co-Sponsor Rep. Marcus C. Evans, Jr. |
| 5/05/2026 | House | Added Alternate Chief Co-Sponsor Rep. Jehan Gordon-Booth |
| 5/05/2026 | House | Added Alternate Chief Co-Sponsor Rep. Camille Y. Lilly |
| 5/05/2026 | House | House Committee Amendment No. 1 Rules Refers to Public Health Committee |
| 5/07/2026 | House | House Committee Amendment No. 1 Adopted in Public Health Committee; by Voice Vote |
| 5/07/2026 | House | Do Pass as Amended / Short Debate Public Health Committee; 009-000-000 |
| 5/07/2026 | House | Placed on Calendar 2nd Reading - Short Debate |
| 5/19/2026 | House | Second Reading - Short Debate |
| 5/19/2026 | House | Placed on Calendar Order of 3rd Reading - Short Debate |
| 5/21/2026 | House | Third Reading - Short Debate - Passed 107-000-000 |
| 5/22/2026 | Senate | Secretary's Desk - Concurrence House Amendment(s) 1 |
| 5/22/2026 | Senate | Placed on Calendar Order of Concurrence House Amendment(s) 1 - May 25, 2026 |
| 5/28/2026 | Senate | House Committee Amendment No. 1 Motion to Concur Filed with Secretary Sen. Julie A. Morrison |
| 5/28/2026 | Senate | House Committee Amendment No. 1 Motion to Concur Referred to Assignments |
| 5/28/2026 | Senate | House Committee Amendment No. 1 Motion to Concur Assignments Referred to Public Health |
| 5/28/2026 | Senate | House Committee Amendment No. 1 Motion To Concur Recommended Do Adopt Public Health; 008-000-000 |
| 5/30/2026 | Senate | Added as Co-Sponsor Sen. Cristina Castro |
| 5/31/2026 | Senate | House Committee Amendment No. 1 Senate Concurs 054-000-000 |
| 5/31/2026 | Senate | Senate Concurs |
| 5/31/2026 | Senate | Passed Both Houses |